Cutting Edge Care 10 Top Clinics and Hospitals for Pulmonary Fibrosis

Being diagnosed with pulmonary fibrosis can be life crushing. A dilapidating, progressive lung disease, pulmonary fibrosis is chronic and often deadly depending on what stage you are in and what level of severity that stage encompasses. There are four distinct stages of this life-threatening disease: mild, moderate, severe and very severe. The type of treatment you can receive often depends on the level of PF diagnosis you receive.  

What Does Pulmonary Fibrosis Do to Your Lungs?

Pulmonary Fibrosis is a chronic and progressive lung disease. It develops when the tissue of your lungs becomes scarred and damaged. The scarred and damaged tissue thickens and stiffens, making it progressively harder for oxygen to pass into the bloodstream. As the tissue of the lungs thickens, the lungs stop functioning properly, and over time they will begin to fail.

Woman doctor looking patient chest x-ray

What Causes Pulmonary Fibrosis?

It is very rare that the exact cause of pulmonary fibrosis can be pinpointed. There could be any number of factors that lead to a diagnosis.  

Some of these factors include:

  • Your Environment

Long-term exposure to certain types of dust from coal, grain or silica can scratch and tear at your lungs over time, causing permanent damage. Occupations that involve working with metal cutting that exposes you to hard metal dust and fibers can do the same. Even constant exposure to animal feces can eventually cause PF.

  • Medical Treatments

Pulmonary Fibrosis can also be the unfortunate result of certain medical treatments for other diseases. Radiation therapy for cancer is the most common treatment that can cause this kind of permanent damage to your lungs. Breast cancer and lung cancer treatment can both expose the lungs to extended periods of radiation that can result in long-term damage and scarring.

  • Medicine

Certain medications and drugs — like chemotherapy drugs, Cordarone for heart problems and antibiotics like Macrobid — can also cause enough damage to your lungs over time to result in permanent tissue hardening.

  • Illness

Sicknesses like pneumonia and other respiratory viruses like influenza can irritate the lungs to the point of causing permanent damage if they last too long. Prolonged, deep-chested coughing and fluid in the lungs that makes it hard to breathe can leave heavy scarring that cannot be repaired. Even auto-immune diseases like rheumatoid arthritis can cause pulmonary fibrosis.

  • Smoking

Unsurprisingly, both smoking and second-hand smoke exposure can create complications for your lungs that lead to PF. Smoke has long been known to cause all kinds of complications when it comes to your lungs. If you don’t develop PF directly from smoking, you can develop it because of lung cancer and radiation therapy for that cancer. This could manifest right after treatment or years later.

Many different conditions, treatments, medicines and other substances can trigger this disease, but the truth of the matter is that most of the time a cause cannot be found, and doctors are left guessing. This can make finding a way to treat it even more difficult. Pulmonary fibrosis without a known cause is called idiopathic PF, and it is the most common form.

Symptoms of Pulmonary Fibrosis

The symptoms of pulmonary fibrosis can look a lot like the symptoms of other diseases. Alone and for a brief period, they could be a result of any number of things and should not be taken too seriously. A combination of the following for a prolonged period is cause for concern, however.

Symptoms of Pulmonary Fibrosis could include quote

These symptoms could include:

  • A deep, constant dry cough
  • An ache in the muscles or joints that won’t go away
  • Rapid weight loss without explanation
  • Unexplained swelling of the tips of fingers and toes
  • Difficulty breathing or shortness of breath during activities that require minimal effort

Treatment for Pulmonary Fibrosis

Every case of pulmonary fibrosis is different, so the prescribed treatment will vary based on the individual and how severe the case is. If you have other health issues besides PF, this could limit your treatment options. If you’re already at the most severe level of PF, this could also limit your treatment options. The range of treatments narrows depending on how early the doctor catches the disease. Treatment can be anything from lung exercises to medication and therapy.

Here is a list of some available treatments:

  • Oxygen Therapy

Oxygen tube in patient's noseIf your doctor measures your oxygen level through all the different activities you do on a normal day and sees that it consistently drops below 88 percent, he may prescribe oxygen for you. This means you will be given an oxygen tank and tubes connected from the tank to your nose that administer oxygen to help you breathe.

The tank can be frustrating to lug around and embarrassing for many, but the benefits often far outweigh the downsides. Oxygen therapy can allow you to be active and do all the tasks you have always done without struggling with shortness of breath and the sore muscles and joints that can accompany a bloodstream that doesn’t get the oxygen it needs to function correctly.

  • Pulmonary Rehabilitation

This brand of therapy covers a multitude of problems that accompany pulmonary fibrosis, from the physical to the emotional to the mental. Pulmonary rehabilitation helps people fight breathlessness and the plummeting mood swings that can accompany the realization that you can no longer do things the way you did when you were healthy.

This involves a specialized doctor coming to your home or giving you inpatient therapy. The therapy can include exercise training, counseling, nutritional aid and breathing exercises that help expand your lungs. You will also be educated on the chronic disease you are living with so you can better prepare for the future and improve how you deal with the present.

  • Curative Care

This is an explorative form of treatment for pulmonary fibrosis. Curative care allows a person to be a candidate for experimental treatments and PF research. This can involve anything from being placed on newly discovered medications that are going through the testing phase to being evaluated for a lung transplant. Not everyone can or should seek out this type of care. Much like palliative care, it is often better to wait until your symptoms are more severe before you resort to these kinds of measures.

  • Drug Therapy

Most drug therapies are only capable of slowing down the destructive effects of pulmonary fibrosis, and many of them come with a risk of negative side effects. Drugs like prednisone and mycophenolate mofetil can treat inflammation in the lungs and slow the decline in their ability to function. Taking these drugs can cause mild to severe complications like diarrhea, disruption of pregnancies, internal infections and liver and pancreatic problems. Although most of these drugs have been FDA approved, they are not recommended due to the health problems they could create on top of PF.

  • Systemic Enzyme Therapy

The use of systemic enzymes is a lesser-known healthy natural supplement for pulmonary fibrosis that has been gaining some ground in the medical world. This is especially attractive for people who suffer from other medical conditions that pose a higher risk for treatments like drug therapy that involve harsh chemicals.

Systemic enzymes taken orally can help break down the fibrin that causes your lungs to scar. This allows you to breathe more normally over time. The enzymes used in systemic enzyme therapy have been used by naturopathic doctors all around the world for decades. Although it is not guaranteed to work for everyone, this natural approach to treating PF comes with little to no risk and is therefore worth a try for those looking for a chemical-free form of relief. It makes sense to use something our body naturally produces to function better as an aid in an area where it is struggling to perform.

  • Palliative Care

Palliative care is often reserved for the most extreme cases of pulmonary fibrosis. Care like this often involves counseling and end-of-life treatment plans and services like hospice. It is important that anyone diagnosed with this chronic disease receive this kind of care at some point, even if it’s alongside other types of treatment like curative care.

Who Offers Pulmonary Fibrosis Care?

There are several experimental medical research centers, professional clinics and well-known hospitals that are provide top pulmonary care. If you think you may have this disease or if you have already been diagnosed and are looking for a treatment facility, here is a list of the top 10 clinics and hospitals that provide cutting-edge care for pulmonary fibrosis and other lung diseases.

Clinics and Hospitals for Pulmonary Fibrosis Divider 1

National Jewish Health

This academic medical research facility is in Denver, Colo., and is known as one of the top ground-breaking research and treatment centers for adult pulmonology. According to the U.S News and World Report, this facility has been the leading respiratory hospital in the nation for over 16 years. The doors have been open to patients since 1899, and to this day it remains a non-profit organization that treats people regardless of whether they have health insurance.

Clinics and Hospitals for Pulmonary Fibrosis Divider 2

Mayo Clinic

There are several branches of Mayo Clinic that treat pulmonary fibrosis, but the most well-known for its special focus in adult pulmonology is the clinic located in Rochester, Minn. This Mayo Clinic is known for treating a high volume of severely at-risk patients, and it consistently receives an excellent score in survival odds and patient safety. It also has a large nursing staff, an adult intensive-care unit, excellent patient services and highly advanced technology like multislice spiral CT scan and transplant services. They have been named one of the best hospitals for treating pulmonary fibrosis patients for the past three years in a row.

Clinics and Hospitals for Pulmonary Fibrosis Divider 3

Cleveland Clinic

Cleveland Clinic in Cleveland, Ohio, is a general medical and surgical facility that has been consistently ranked at number 2 on the national hospital honor roll and number 3 in the specific area of pulmonology. They are well known for their excellent treatment of chronic obstructive pulmonary disease and lung cancer. Their non-invasive breathing aids for pulmonary patients provide comfortable respiratory support and fall right in line with the rest of their cutting-edge technology and care.

Clinics and Hospitals for Pulmonary Fibrosis Divider 4

Massachusetts General Hospital

This general hospital is in Boston, Mass., and is known for its top-of-the-line pulmonary rehabilitation services. They are also high-performing in chronic obstructive pulmonary disease treatment and lung cancer surgery. Unlike many of the other medical institutes that focus on pulmonology, Massachusetts General Hospital has a section for pediatric pulmonology as well as adult.

Clinics and Hospitals for Pulmonary Fibrosis Divider 5

UPMC Presbyterian Shadyside

Shadyside is in Pittsburgh, Penn., and is consistently highly ranked for psychiatry, rehabilitation and pulmonology. All three of these areas are important for excellent PF care.

Clinics and Hospitals for Pulmonary Fibrosis Divider 6

UCSF Medical Center

UCSF is in San Francisco, Calif. The center has been known for its high performance in lung cancer surgery and PF treatment for the past three years and employs several high-ranking specialists.

Clinics and Hospitals for Pulmonary Fibrosis Divider 7

University of Michigan Hospitals and Health Centers

This facility is in Ann Arbor, Mich., and has a specific division for pulmonary and critical care medicine and research. They provide both inpatient and outpatient care and are known for the NIH grant-funded research center that focuses on pulmonary inflammation, injury, repair, fibrosis, host defense, lung transplantation and lung cancer.

Clinics and Hospitals for Pulmonary Fibrosis Divider 8

Barnes-Jewish Hospital

Barnes-Jewish Hospital is in St. Louis, Mo., and provides pulmonary medical services for over 10,000 patients and 5,000 outpatients a year. They specialize in lung transplants, interventional pulmonology, lung volume reduction surgery and lung cancer surgery.

Clinics and Hospitals for Pulmonary Fibrosis Divider 9

Hospitals of the University of Pennsylvania-Penn Presbyterian

This facility is in Philadelphia, Penn. It has been ranked number 10 on the national hospital honor roll list for the past two years and number 9 in pulmonology for almost as long. Its specialties in the lung disease area lie in lung cancer surgery and chronic obstructive pulmonary disease, with above average survival rate ratings and excellent inpatient and outpatient services, as well as highly advanced technology.

Clinics and Hospitals for Pulmonary Fibrosis Divider 10

UCLA Medical Center

UCLA has several medical centers throughout California, but the pulmonology-focused center is in Los Angeles. Out of all the facilities mentioned here, this branch of UCLA has one of the largest varieties of lung disease treatment options out there. The center comprises an asthma and cough center, a center specifically for chronic obstructive lung disease, a pulmonary fitness and rehabilitation program, a pulmonary sleep medicine program and more. It also partners with the Pulmonary CCM Fellowship for training.

To learn more about finding care for PF, visit these links:

Never disregard professional medical advice or delay in seeking it because of any information received from us.

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  • froleprotrem
    Posted on March 18, 2020 at 12:23 am

    Thank you for sharing with us, I conceive this website really stands out : D.

  • Norma Berardi Lohsen
    Posted on May 6, 2020 at 1:11 pm

    Are there any clinics doctors you can recommend we live in Bergen County New Jersey who would also be able to go to New York City your help would be most appreciated thank you

    • PF NOW
      Posted on May 8, 2020 at 9:10 pm

      Thank you Norma for reaching out to us. We do not maintain a list of doctors or specialists. I think your insurance company should be able to help you with this. You can also reach out to our members through the pulmonary fibrosis NOW! Facebook group and someone may be able to give you a reference to a good clinician per their experience. Pulmonary fibrosis is a tough disease to diagnose and I would encourage you to do your research, ask questions and seek referrals for other doctors or specialists and even testing, if you need to.
      The link to the Facebook group is: Once you sign in, we will have to approve you because the group is closed.

  • Stephanie Baker
    Posted on May 11, 2020 at 11:16 pm

    Does anyone have any information on pulmonary fibrosis specialists in the Houston, Texas area? My dad has IPF and I understand this disease is hereditary.

    • PF NOW
      Posted on May 12, 2020 at 3:02 pm

      Hi Stephanie, pulmonary fibrosis is usually considered to be familial when two or more members of the same family (either a parent, child, aunt/uncle or cousin) have been diagnosed with the disease. I am attaching a link to an article titled “Is pulmonary fibrosis hereditary?” that will answer some of the questions you may have: Genetic testing is available for several genes that have been shown to be linked to familial pulmonary fibrosis. As of yet, it is not strongly recommended as there is no guidance for clinicians regarding when to pursue genetic testing in patients with IPF or how to use test results in patient care.

  • christine
    Posted on June 27, 2020 at 6:07 pm

    is there any in the uk

  • Karen
    Posted on August 13, 2020 at 9:17 pm

    Is the Mayo Clinic in Phoenix rated as highly as Rochester MN Mayo Clinic for PF?

    • PF NOW
      Posted on August 14, 2020 at 7:38 pm

      Hello Karen, thank you for reaching out to us. According to US News rankings for pulmonary care, Mayo Clinic in Rochester is #1, while Mayo Clinic in Phoenix is ranked #6. Please let us know if we can help you in any other way.

  • Patricia Hons
    Posted on August 20, 2020 at 4:06 am

    Hi, I have just diagnosed with PF, after having open lung biopsy. The doctors at Geisinger Medical Center in Danville, Pa are having hard time because I have Lupus , Fibromylagia, and questionable Pulmonary HTN, and say I am a very complicated case and just keep shifting me from one specialty to another! I am so upset, seams like everyone dumping me because I am complicated! Any advice you can give me would be appreciated!!! Help!!

    • PF NOW
      Posted on August 21, 2020 at 4:23 pm

      Hello Patricia, I am so sorry for everything you are going through. I can understand your frustration at not getting answers and being sent from one specialty to another, particularly after receiving this diagnosis. It looks like you are trying to do some research on your own for ways to best manage this, which is great. Diagnosing and treating pulmonary fibrosis (PF) does require specialists from various disciplines. You probably know that autoimmune conditions like lupus are linked to pulmonary fibrosis. You may need to have different specialists as part of your health care team to manage your various conditions. Hope you are able to find doctors that take a holistic approach in treating you as a person. Meanwhile, there are several things that you can do to better manage your symptoms, breathing, stress levels and improve your quality of life. Please browse our website for more information: For information on breathing techniques that can help with symptoms; For success strategies that can improve your quality of life:;
      For nutrition tips and anti-inflammatory foods that can help with all 3 of your conditions:
      There is some evidence showing the beneficial effects of systemic enzyme supplementation in terms of reducing pain and inflammation, breaking down fibrin build up in the body, reducing PF symptoms and improving quality of life. If it works for you, I believe that systemic enzymes can have multiple overall benefits. If you are interested in getting more information about these natural health supplements, you can write to us at or you can call me at 951-249-3054 and I’d be happy to answer your questions. Thank you for reaching out to us. We are here to support you.

  • Leslie
    Posted on September 13, 2020 at 2:34 pm

    Are there any good Dr’s or facilities you can recommend in the Northwest Indiana/Indianapolis area? My dad is in the hospital now on 60 liters and when he went in to the ER he was on 8 liters. We went to the ER due to swelling of his extremities and they used diuretics which dropped his BP and his O2 saturation so they put him on high flow. I feel like he’s on too much O2 and is now showing signs of oxygen toxicity but they won’t wean him. We need a facility that specializes in pulmonary conditions. Any suggestions near me?

    • PF NOW
      Posted on September 15, 2020 at 11:29 pm

      Hello Leslie, I am so sorry to hear about your dad’s condition and everything you are going through. Since pulmonary fibrosis is a relatively rare disease, it may sometimes be difficult to find the right specialist. Upon doing some research, here are links to 2 facilities we found in your area that you can look into:
      Lung Care | Community Healthcare System⁠⁦‪
      We do not maintain a list or recommend any particular center, but hope you are able to find the right specialist who can take care of your dad’s needs in the best possible way. Take care and please do not hesitate to contact us if you need further information. We are here to support you.

  • Katherine
    Posted on October 8, 2020 at 8:29 am

    Am really sorry about your dad situation hope it will be better. Is really important to have a good clinic and specialist who will help you

    • PF NOW
      Posted on October 9, 2020 at 2:15 pm

      Thank you Katherine for your kind words. Our members supporting each other really warms our heart.

    Posted on March 15, 2021 at 7:26 pm


    • PF NOW
      Posted on March 15, 2021 at 10:28 pm

      Hello Norma, Thank you for reaching out to us. If you feel comfortable sharing what area you are looking at, we could do some research and help you find specialists in that area. Our other members may also be able to suggest names of doctors or facilities that they have used. If you are not a member of our Facebook private group, I would like to invite you to join us: We have over 200 members and this is a safe place for people to ask questions, share experiences and support one another.

  • DonAnn Osborne
    Posted on May 19, 2021 at 8:11 pm

    Does anyone know of a physician in the state of Florida that treats PF? I have an elderly Aunt who has been unable to find a pulmonologist to treat/evaluate her. Thank you in advance for any information

    • PF NOW
      Posted on May 20, 2021 at 5:01 am

      Hello DonAnn, we will do some research and let you know. What part of Florida does she live in? We will also post your question in our Facebook private group which has nearly 300 members to see if anyone in our community from Florida has any recommendations. I’d also like to invite you/your aunt to join our group here: This is a safe place where you can meet and connect with others in our PF community and share your story and learn from others’ experiences. Thank you for reaching out to us. We are here to support you

  • venky
    Posted on October 6, 2021 at 6:59 am

    Thank you. Your article has given good insights into pulmonary fibrosis. One of the major and dangerous diseases related to the lungs. Getting proper treatment on time is more crucial.


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