Have you begun keeping track of your own medical records?
- If so, you may already be noticing the benefits of recordkeeping.
- If not, you can get started by visiting Part 1 of this series about recordkeeping and printing off the template for your Weekly Update.
Either way, keep reading to access another template!
To continue your recordkeeping efforts, click here. Then print the template & fill it out from home. The photo below shows a preview of the template titled “My Treatment Plan.”
Since recordkeeping can feel stressful, we recommend asking a relative or caregiver you trust to help with the process. Together, you can make a copy of our recordkeeping templates and fill them out.
Filling out this template will help you decide on the best treatment options for you. It will also help with keeping track of the treatments you have tried or want to try. Over the course of months or years, you’ll be able to reflect upon these efforts, measure your progress, and take control of your health.
There are many more reasons to keep track of your medical records. Stay tuned for Part 3 of this Recordkeeping series, where we’ll list all the reasons and provide another template to help people with PF.
For encouragement or more recordkeeping ideas, please sign up for our support group and join our community forum.
2 comments
Patricia Randa
Posted on September 17, 2022 at 3:07 pmWhat is the morbidity of an 84 year old woman on oxygen 24/7 for 18 months.
Give me the facts, I can take it. I am not afraid to die.
PF NOW
Posted on December 8, 2022 at 3:37 amHi Patricia,
We reached out directly in September but wanted to let you know we’re still thinking of you. We understand how difficult it is to find the truth about the progression of PF. Within our community, we’ve heard from people who outlived their doctor’s and their own expectations. Here are the facts you’ve requested: https://pulmonaryfibrosisnow.org/2021/07/31/faqs-about-pf/ (scroll down to the question “I have a PF diagnosis – what’s the prognosis?”).
To lean more, you can visit our article debunking common myths about PF here: https://pulmonaryfibrosisnow.org/2021/09/24/myths-about-pulmonary-fibrosis/
You can also visit part 2 of our FAQs (https://pulmonaryfibrosisnow.org/2021/08/25/faqs-about-pf-part-2/), sign up for support group (https://pulmonaryfibrosisnow.org/sign-up-form/), and post in our community forum (https://www.facebook.com/groups/1198991686930106).
Please keep us posted on how you’re doing!