There are many ways to help your relative become a paid caregiver. Often, people with Pulmonary Fibrosis (PF) need to have care provided to them either temporarily or permanently by a family member or another person who is related to them. Fortunately, the Americans with Disabilities Act recognizes this need and provides protection. Multiple government programs let relatives of people with PF become paid caregivers. 

If you qualify for Medicaid, you might be able to hire a family member as a caregiver. Depending on which state you live in, you could coordinate your own health services. More information on Medicaid’s Self-Directed Services are available here

If you are a Veteran, you might be able to hire a family member or even a neighbor as a personal care aide. The VA’s Veteran-Directed Home and Community Based Services program lets Veterans choose their own caregivers, if they meet certain requirements. Another program, called Aid and Attendance benefits, can help with caregiving costs as well.

Even if you don’t qualify for the above services, you may be eligible for Long-Term Care (LTC) insurance. Typically, LTC lets people with PF pay family members to be their caregivers; however, each policy varies. Your insurance agent can provide more information and answer any questions. 

Organizations in your area may also have resources to help with paying caregivers. For help researching assistance in your specific location, please reach out to our support group

Lastly, your caregiver may be able to list certain expenses as tax write-offs. The costs of caring for someone with PF can quickly add up. Many family caregivers pay for transportation to and from appointments, making modifications to increase accessibility at home, and more. Make sure to keep track of medical expenses and hold on to your receipts. With that information, an accountant can look up what you qualify for and help you file for deductions. 

To connect with others who have or are impacted by PF, join our online community forum, and attend our virtual support groups on Zoom.

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