It’s been an extremely challenging year for people with and impacted by Pulmonary Fibrosis.

It’s been a year since Covid-19 was declared a pandemic by the World Health Organization in March 2020. The pandemic has impacted everyone this year, but our community has been disproportionately affected. This time has been particularly difficult for people fighting lung diseases like Pulmonary Fibrosis (PF), since they are at a higher risk for developing serious illness from Covid-19. 

We’ve responded by continuing our commitment to fighting PF right now!

As always, we have dedicated the past year to our mission: using research, interactive learning, and self-monitoring to educate the public about all treatments, including natural, supplemental, and alternative therapies for treating chronic PF. Especially with PF emerging as a serious complication of Covid-19, it’s become even more important to increase awareness about this rare disease and all its treatments. 

Our Director, Dr. Neha Shah, has been conducting research on potential ways to combat Covid-19 and reduce post-Covid fatigue. The results were recently published and are very promising. This interview explains how a natural treatment that is used to help people with PF is now also being used to help people with Covid-19 recover more quickly. 

Our staff have also been offering virtual support groups on the 2nd Tuesday of every month at 3:30pm PST / 6:30pm EST. People with PF and people impacted by PF (such as caregivers or relatives) have been helping each other heal from all the grief, fear, and uncertainty. The community’s compassion, knowledge, and advocacy has been increasingly visible daily in our Facebook group, which grew to include over 200 active members! 

Our resources for online learning expanded too, with lots of new blog posts addressing key concerns about PF and Covid-19. Here is our recent article on the vaccines for Covid-19, and here are some ideas to help you through social distancing and quarantines. 

Together, we’ll continue to fight PF now!

We are so grateful to everyone who has helped us fight PF and brought hope to those struggling with the impacts of Covid-19. Here are a few things you can do to help this next year be easier for people with or impacted by PF: 

  1. Share the news about our research
  2. Join our online community
  3. Attend our virtual support groups on Zoom. You can register here
  4. Talk to your doctor about the vaccine for Covid-19

Related Post

Lung Transplant Awareness Month

July is our first annual Lung Transplant Awareness Month! When discussing treatment options for PF, your doctor or pulmonologist may Read more

Mental Health Awareness Month

The month of May is national Mental Health Awareness Month in the United States. With mental illness impacting millions of Read more

Finding Published Research

When you or someone you know has PF, you’ll likely have questions about the latest research and the safest treatment Read more

Recordkeeping for Patients with PF: Part 3

There are many reasons to keep track of your own medical records.  Recordkeeping is a worthwhile investment for your long-term Read more

Leave a comment
  • Newsletter Signup