Are you seeing a specialist you’d recommend to other patients with PF? If so, please fill out our questionnaire to help us prepare for our upcoming special education week. If not, no worries – we’ll keep you posted and share a list of patient-recommended PF specialists as soon as it’s ready. 

Either way, please save the dates for Self Advocacy week on October 17th-23rd. In this Special Education Week, we’ll focus on the theme of self-advocacy and help you stand up for yourself no matter the circumstances. 

Get ready for a full week of programming! Here is the schedule: 

  • October 17th: Advocacy stories 
  • October 18th: Tips for finding the right care
  • October 19th: When to get a 2nd (or 3rd) opinion
  • October 20th: Deciding on treatment options
  • October 21st: Understanding research publications
  • October 22nd: Recordkeeping for PF patients
  • October 23rd: Advocating for others with PF 

Until then, know we are here to support you. Our monthly support group will be meeting on October 12th, and you can sign up here if you have not done so before. You can also post 24/7 in our online community forum.

Related Post

Protected: Advocating for Others with PF (Highlights from an Interview with Dr. Noah Greenspan)

Though the Self-Advocacy Special Education Week at PF NOW! is coming to an end, our advocacy for people with PF Read more

Protected: Advocating for Others with PF (The Full Interview with Dr. Noah Greenspan)

To conclude this Special Education Week at PF NOW!, we interviewed a renowned advocate for people with PF: Dr. Noah Read more

Effective Treatments for PF

Did you know there are a variety of effective treatments for PF? There are many myths about PF - and Read more

FAQs about PF: Part 2

If you or someone you know has Pulmonary Fibrosis, you probably also have lots of questions. Last month we answered Read more

Leave a comment