Dear PF NOW! Community,
As we approach the end of 2023, we find ourselves reflecting on the incredible journey we’ve undertaken together in the fight against pulmonary fibrosis. This year has been marked by collective efforts, unwavering support, and significant strides toward our shared goal of finding a cure for this rare and challenging disease.
Our Milestones in 2023:
- Awareness Campaigns: Through your dedicated support, we’ve amplified our efforts to raise awareness about pulmonary fibrosis. From social media campaigns to community events, we’ve reached more patients, relatives, and caregivers than ever before – shedding light on the impact of this rare disease and reaching people in more than 50 different countries.
- Educational Initiatives: Knowledge is power, and this year, we’ve empowered our community with educational resources about pulmonary fibrosis. Articles, templates, and informative materials have provided valuable insights, fostering understanding and empathy for those affected by the condition. Two topics we covered in depth include lung transplants and mental health for people with PF.
- Community Support: Engagement is one of our core values. In 2023, we expanded our community engagement opportunities, ensuring that individuals and families facing pulmonary fibrosis have access to the resources, guidance, and comfort they need throughout their journey. We doubled the frequency of support groups and managed to accommodate more time zones to welcome participation all around the world.
- Research Collaborations: Thanks to your generosity (another one of our values), we’ve strengthened our collaborations with researchers and wrapped up our latest clinical trial (data analysis is underway). These efforts have propelled groundbreaking research forward, bringing us one step closer to unlocking the mysteries of pulmonary fibrosis and developing effective treatments.
Looking Ahead to 2024:
As we stand on the cusp of a new year, our commitment to fighting pulmonary fibrosis remains steadfast. Here’s a glimpse of what we have planned for 2024:
- Research Funding: We aim to intensify our fundraising efforts, especially during this Giving Season. Your support this month will directly contribute to funding critical research projects focused on unraveling the complexities of pulmonary fibrosis.
- Community Engagement: In the spirit of unity, we will continue to engage and involve our community in meaningful ways. Whether it’s through support groups, virtual events, or advocacy initiatives, we believe in the strength of a community united for a common cause.
- Enhanced Awareness: Our goal is to reach even more people with our awareness campaigns. By expanding our reach and educating diverse audiences, we can create a ripple effect that fosters understanding, empathy, and support for those affected by pulmonary fibrosis.
- Hope and Healing: In 2024, we aspire to be the beacon of hope for individuals facing pulmonary fibrosis. Through innovative programs and a continued focus on patient support, we aim to enhance the quality of life for those affected and their families.
Join Us this Giving Season:
This time of year can cause a mix of emotions for those impacted by PF. If you have physical limitations due to PF, it can be difficult not traveling or celebrating the way others do. If your relationships are strained due to the difficulties of fighting PF, this season can be an extra lonely time. And if you’ve lost a loved one this year, facing the holidays without your whole family can be devastating.
No matter how you’re feeling this month, please know you’re a valued part of our community here at PF NOW! As 2023 comes to an end, let’s enter 2024 with a shared commitment to fighting PF together. For this giving season, please consider volunteering, donating, or starting a Facebook campaign to raise funds with peers. Even if you can’t give right now, you can share or comment on this blog, and help spread the word about our mission and services.
Stay In Touch
PF NOW! hosts virtual support groups on Teams multiple times each month. Not only will you strengthen your network of connections but you’ll learn firsthand how those with PF best look after themselves. PF NOW! also has a Facebook group whose active community shares their PF journey and their tips with others. New to online support groups? Download our free step-by-step guide for online advocacy here.
Never disregard professional medical advice or delay in seeking it because of any information received from us.