Thank you for your participation in the 2024 Rare Disease Day! These past few days have been a whirlwind of education, advocacy, and connection. Let’s continue the momentum in March with a special education month about PF advocacy and activism. All month long, join our community as we learn more about current events of interest to people with or impacted by PF. 

Week 1

  • March 1: To start the month, join the FDA’s event for rare disease advocacy. This day-long event expands upon the activism that occurred during February’s Rare Disease Day. The March 1st event will be livestreamed from 9AM – 4:30PM EST here: https://youtube.com/live/j6H1jeqdm4I?feature=share

Afterwards, be sure to join our community forum here and post about your favorite part of the day!

Week 2

  • March 8: Our advocacy month continues by celebrating International Women’s Day. Though both men and women can be afflicted by PF, this is an important time for exploring the unique challenges faced by women – and for recognizing the numerous women who have made significant strides in PF-related research. Stay tuned for our blog about this special day. 

Week 3

  • March 15: As we observe Long COVID Awareness Day, it’s crucial to shine a spotlight on the intersection between PF and long COVID, two conditions that not only share respiratory challenges but also have the potential for interconnected health outcomes. Stay tuned for this week’s advocacy blog post, where we’ll delve into the connections between PF and long COVID. We’ll explain the shared symptoms, affirm commonly heard community concerns, and share progress about our research on the two conditions. 
  • During this week, visit our social media to discover inspiring stories of folks who launched activism projects in their neighborhoods. Hear of individuals who found ways to make a big impact… and get ready to think of ways you can help too. Together, we can support at-risk individuals who are recovering from COVID and facing an increased risk of developing chronic health concerns such as PF.

Week 4

  • March 23: Join our virtual support group as we wrap up the special education month and reflect together on ways to continue supporting this cause. Come for the caring connections, and prepare to walk away with tangible tools for taking care of yourself and others during this difficult journey. 

Do you know of any other events happening this month? Let us know in the comments section below how you’ll be practicing advocacy and activism!

Stay In Touch

PF NOW! hosts virtual support groups on Teams multiple times each month. Not only will you strengthen your network of connections but you’ll learn firsthand how those with PF best look after themselves. PF NOW! also has a Facebook group whose active community shares their PF journey and their tips with others. New to online support groups? Download our free step-by-step guide for online advocacy here.

Never disregard professional medical advice or delay in seeking it because of any information received from us.

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