Posted on Feb 28, 2024 In Take Action - Fight PF Now!, Look for the Right Care
Thank you for your participation in the 2024 Rare Disease Day! These past few days have been a whirlwind of education, advocacy, and connection. ...
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Advocacy & Education
Posted on Nov 30, 2023 In Look for the Right Care
Dear PF NOW! Community, As we approach the end of 2023, we find ourselves reflecting on the incredible journey we’ve undertaken together in the ...
Posted on Oct 31, 2023 In Look for the Right Care
In the United States, November is considered “National Family Caregivers Month.” While caregivers and relatives always deserve special thanks and recognition, this month is ...
Posted on Sep 01, 2023 In Related blogs, Recently Diagnosed?
In a recent support group meetup, one participant asked, “Why is it so hard to find a cure?” There are countless researchers, clinicians, and ...
Posted on Jun 22, 2023 In Recently Diagnosed?, Look for the Right Care
If you have PF and are experiencing mental health concerns, you are not alone. In fact, patients with PF are at an increased risk ...
Posted on May 23, 2023 In Recently Diagnosed?, Look for the Right Care
Each year, the month of May is recognized as “Mental Health Awareness Month” – a time to raise awareness and promote mental health. The ...
Posted on Feb 27, 2023 In Recently Diagnosed?
If you are experiencing significant challenges associated with symptom management, quality of life, and health equity or accessibility, you are not alone. Over 300 ...
Posted on Oct 27, 2022 In Recently Diagnosed?, Look for the Right Care
In July, we hosted an event featuring Samuel Kirton, a survivor of a bilateral lung transplant. He shared his story, answered the community’s questions, ...
Pulmonary Rehabilitation Week is coming up this month, from June 20th-26th. If you or someone you know has PF, this is the perfect time ...
Posted on May 02, 2022 In Recently Diagnosed?, Look for the Right Care
The month of May is national Mental Health Awareness Month in the United States. With mental illness impacting millions of people throughout the world, ...
