Posted on Mar 27, 2024 In Take Action - Fight PF Now!
As we near the end of special education month, dedicated to advocacy and activism, we’d like to shed light on Long COVID Awareness. Specifically, ...
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COVID-19
Posted on Feb 28, 2024 In Take Action - Fight PF Now!, Look for the Right Care
Thank you for your participation in the 2024 Rare Disease Day! These past few days have been a whirlwind of education, advocacy, and connection. ...
Posted on Nov 30, 2021 In Recently Diagnosed?, Look for the Right Care
During our Self-Advocacy Special Education Week, multiple members of the PF NOW! community volunteered to share their advocacy stories. Our first two advocacy stories ...
Posted on Nov 30, 2021 In Recently Diagnosed?, Look for the Right Care
During our Self-Advocacy Special Education Week, multiple members of the PF NOW! community volunteered to share their advocacy stories. Our first two advocacy stories ...
Posted on Oct 27, 2021 In Find Natural Therapies
With time, more and more people are understanding the realities of COVID-19 long haul (or “Post COVID-19 Condition”). In September, we posted a blog ...
Posted on Oct 17, 2021 In Recently Diagnosed?
Many people want to improve their self-advocacy skills, but they don’t know how to get started. If you or someone in your family were ...
Posted on Oct 15, 2021 In Look for the Right Care
Though the Self-Advocacy Special Education Week at PF NOW! is coming to an end, our advocacy for people with PF will continue for years ...
Posted on Oct 13, 2021 In Take Action - Fight PF Now!
The theme for this week is self-advocacy. Self-advocacy means standing up for yourself, speaking up for your needs, or representing your own best interest. ...
Posted on Sep 14, 2021 In Find Natural Therapies
One of our research studies has been published. Our Director, Dr. Neha Shah, has been collaborating & conducting research to help people with PF and ...
Posted on Mar 25, 2021 In Take Action - Fight PF Now!
The Covid-19 pandemic caused by SARS-CoV-2 has emerged as a global health crisis and has impacted the lives of everyone across the globe in ...
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